Client Spotlight: Read About our NJ Clients and their Beloved Caregivers

ACSP Clients Jessie and Marie, and the impact their caregivers Indira and Marie make in their lives

HHA Indira (right) has made monumental changes in Jessie’s life

GAO and many other advocates are fighting for increased funding for New Jersey’s Personal Care Assistant (PCA) program. This program enables thousands of vulnerable New Jersey residents stay at home, and we are hoping that our advocacy efforts lead to fairer wages for caregivers like Indira and Michele.

Indira & Jessie

Indira is at Jessie’s home every morning at 5:00 without fail. After taking on Jessie’s case and learning that she spent most of her time in bed, it became Indira’s mission to consistently challenge her to get out of bed and get active. Now, every morning before dawn, Jessie starts her morning with a smile, anxiously waiting for Indira to arrive.

While helping Jessie, who is 31 and diagnosed with cerebral palsy, with her activities of daily living, Indira also incorporates games, crafts, dancing, and singing. After a few short months with her beloved caregiver, Jessie now has a newfound confidence in her physical abilities and communication and language skills. Indira has quickly ingrained herself as part of Jessie’s family, whose loved ones call Indira “a Godsend.”

Marie & Michele

CHHA Michele (left) is “like a daughter” to her beloved client, Marie

CHHA Michele has been with her client Marie since January of 2017, but you would think they have known each other forever. They share a special bond, and Marie even says that Michele is “like a daughter” to her. Marie lives alone, and if not for Michele’s visits, would be lonely and potential in danger. In addition to the personal care services that Michele provides to keep Marie safe and healthy, you see their bond shine when Michele frequently makes puzzles and quizzes to stimulate Marie’s mind—or as they like to call it, “using our noodles.”

Marie says that without Michele, she would not be fully able to take care of herself. But As soon as Marie arrives at Marie’s door, the time flies as Marie keeps her on her toes—both figuratively and literally. In addition to regularly stimulating Marie’s mind, Michele makes sure that Marie is safe and on balance as she moves around her apartment.

We need your help in supporting dedicated caregivers like Indira and Marie through advocacy. To find out ways you can get involved, email advocacy@bayada.com today.

“Parents deserve to be parents, not skilled nurses, and more importantly, children deserve to be children—not patients.” Two moms share how PDN impacts their families’ lives

This year, our major focus in New Jersey is to fight for higher reimbursement rates for New Jersey’s Private Duty Nursing (PDN) program. One of the most impactful ways to influence legislators is to engage clients and families into advocacy through testimony, which is delivered by these clients to legislators who are in key positions to influence legislators. Below, find powerful excerpts from two moms who support a PDN increase on behalf of their children and their families.

Dana I. – Mother to BAYADA Client, Abi

PDN services help Abi stay safe and healthy, and helps her whole family stay together at home

“There is truly no way to explain on how much caring for a medically fragile child impacts a family. Every errand, every event, every move of your day becomes centered around their care. Abi has been authorized for skilled nursing care by our insurance company, yet she still has five or more unfilled shifts every week.

Lapses in nursing coverage put tremendous pressure on our entire family—we often have to miss work and stay home to provide for her care, putting strain on the family finances. Lost nursing hours also means the entire focus of our time becomes all about our medically-fragile child, and the balance between the other children becomes strained and we often miss beloved activities or events.

Abi is not a child that we can just hire a babysitter for. Her high level of care and constant need for monitoring makes it impossible to have any sense of normalcy without capable & consistent nursing support. There are simply not enough nurses in home care to cover all of the needs of my family and the needs of many, many others.

Institutionalized care is not the answer. My precious daughter brings many challenges to our home, but it would be heartbreaking to have to put her in an institution for lack of nursing support. So here I am prayerfully putting a name and a face to those of you who have the power to make a real difference in this area. Competitive wages would bring stability to her home care nursing and allow our family and families like us to stay together and thrive.” -Dana Insley, Abi’s mom   

Emma K. – Mother to BAYADA client, Lili

Client Lili (left) loves her compassionate and reliable nurse Barbara

“While I count my blessings that we have the right nursing team in place, I often think of the families across the state that can’t fill their nursing shifts. It takes me back to the last time our scheduled nurse had a family emergency and there was no other nurse available to cover her shift. As a single mother of a medically-complex, ambulatory child with no family in the area, you can imagine how it plays out when there isn’t a nurse available for Lili: I have to call out of work myself and cancel any commitments I’ve made for the day. I can’t get the groceries that I was planning to pick up or even do a load of laundry since I can’t leave Lili alone for even a minute. And I have to again plan to do these things during the times I’m expecting to have a nurse to stay with Lili because I can’t get them done otherwise.

We as a society have developed a system of reliability for our communities: Teachers help children learn, police keep our streets safe, ER doctors save lives, and pharmacists fill our prescriptions. But we are failing in keeping home nursing readily available. Just as a prescription, Lili’s care is prescribed by her doctor and authorized by the state. But we cannot rely on its availability. I hope that our state decision makers prioritize home care, if solely for the fact that it keeps children like Liliana at home and keeps families together. Parents deserve to be parents, not skilled nurses, and more importantly, children deserve to be children—not patients.” -Emma K., Liliana’s mom

Dana and Emma exemplify the power of sharing your story. If you’d like to highlight the powerful story of your experience in a home care office, or the story of a client, their loved one, or a caregiver, contact advocacy@bayada.com.

New Jersey’s Legislative Goals and How You Can Help Make an Impact

BAYADA’s Government Affairs Office (GAO) is proud to join with fellow advocates like you to continue to advocate for better wages for our caregivers and increased access to home health care for the tens of thousands of New Jersey residents that rely on this care to stay safe and independent at home. Thank you to our many employees, clients, and families who have advocated on behalf of yourselves, your loved ones, your staff, and your clients regarding our two major 2019 issues:

1. Personal Care Assistant (PCA) Program – Increased Reimbursements for Increased HHA Wages

GAO is advocating for HHAs like Indira (right) and clients like Jessie

GAO is working in collaboration with other providers and the New Jersey Home Care and Hospice Association to educate our legislators on the importance of adequate funding for the Personal Care Assistant (PCA) program.This is especially important as the State recently mandated an increased minimum wage. BAYADA supports a wage increase for all of our home health aides (HHAs) for the incredible, lifechanging work they do—but additional advocacy is necessary so state legislators understand the importance of proportional PCA program funding so that providers like BAYADA can comply with the new mandate and stay sustainable.

Click here to check out how HHA Indira helps her client Jessie stay at home, and about CHHA Michele’s special bond with her client Marie. We are hopeful that our advocacy efforts can lead to a fairer wage for aides like Indira and Michele, as well as better recruitment and retention rates across the ACSP practice so that all New Jersey residents who need this important service can access it. To find out how you can get involved, email advocacy@bayada.com today.

2. Private Duty Nursing (PDN) Program—Increased Reimbursements for Increased Nursing Wages

Increased PDN rates are important to ensure clients like Lili (left) can continue to have reliable nurses like Barbara (right)

GAO is working with the New Jersey Home Care and Hospice Association to educate our legislators on the importance of adequate funding for the Private Duty Nursing (PDN) program. Current PDN program funding makes it difficult for providers like BAYADA to recruit and retain the nurses necessary to care for New Jersey’s most medically complex and residents. This difficulty results in significant access to care issues, as only 85% of scheduled hours are currently filled, and vulnerable New Jersians are going without the care they need to stay safe and healthy at home.

We are lucky to have home care supporters in the legislature who understand the struggles our caregivers and skilled nursing clients face—Recently, Bill S1733/A4575, which proposes a $10 per hour increase for RN and LPN home care services, was introduced. In addition to the increase, this bill also seeks to establish a “rate floor” so that managed Medicaid providers reimburse no less than the state fee-for-service rate for in-home skilled nursing services.

But we need your help in getting this bill to the finish line. Soon, this bill will be up for a hearing, and clients’ and employees’ testimony make the most impact in showing legislators the challenges that arise from inadequate funding and the associated access-to-care issues.

Click here to read excerpts from two clients’ testimonies regarding the importance of PDN in their lives. Powerful stories like the ones Dana and Emma share help our advocacy efforts and show legislators the impact of home care in making a real difference in vulnerable New Jersey residents’ lives. To find out how you can get involved, email advocacy@bayada.com today.

Legislation Close to our Hearts: NJ Mobility Bill Named after Hearts for Home Care Advocate’s Daughter, Mary!

Mom Tara Montague (left) and daughter Mary (center) during a home visit with Asw. Carol Murphy. Asw. Murphy recently introduced “Mary’s Law.”

Home care supporter and New Jersey Assemblywoman Carol Murphy recently introduced a bill which will address unequal access to the purchase of modified vans through the Catastrophic illness in Children Relief Fund.

Assemblywoman Murphy was alerted to the issue after Hearts for Home Care manager and advocate Tara Montague told her about the issue, and how it has impacted her daughter, Mary, and many of New Jersey’s medically fragile children. Mary and Tara have utilized the fund, and have been important advocates in ensuring the fund is both adequately funded and accessible for the many New Jersey residents that need it.

Currently, families can apply to the Catastrophic Fund to purchase a modified van so that they can safely transport their medically fragile child. However, current regulations require that families pay for the van upfront and wait to be reimbursed by the Fund. This stipulation presents a sincere barrier to transportation for families that cannot afford to front tens of thousands of dollars while they wait to be reimbursed.

Mary’s Law addresses this issue by requiring the Catastrophic Fund to provide direct payments for the purchases of specialized, modified motor vehicles. In addition, this legislation will increase the annual surcharge for New Jersey employers from $1.50 to $3.00 per employee to insure the Catastrophic Fund is adequately funded to meet the its purpose and demands.

“Medically fragile children like Mary deserve to travel safely and freely. This legislation ensures that children and their families receive the help they need regardless of their financial situations. Ever since Mary was born, I’ve been a staunch advocate for her needs and for better laws and policies, but I never thought advocacy could hit so close to home–Mary and our family are ecstatic that we can bring about change for all New Jersey’s children and families that need it,” said Tara.

Thank you to Tara and Mary for continuing to be effective advocates on access to transportation. Hearts for Home Care will continue to provide updates as the legislation progresses through New Jersey committees and chambers. If you have questions about this legislation or how to get more involved in advocacy on behalf of yourself, a loved one, or your staff and clients, please contact advocacy@bayada.com today.

Legislation Close to our Hearts: NJ Mobility Bill Named after BAYADA Client Mary Montague!

Mom Tara Montague (left) and daughter Mary (center) during a home visit with Asw. Carol Murphy. Asw. Murphy recently introduced “Mary’s Law.”

BAYADA Legislative Champion, Assemblywoman Carol Murphy, recently introduced a bill which will address unequal access to the purchase of modified vans through the Catastrophic illness in Children Relief Fund. The bill is named after BAYADA client Mary Montague. Not only is Mary a client—but the daughter of an employee! Mom Tara Montague works in the Government Affairs Office (GAO) as client and family advocacy manager. Mary and Tara have utilized the fund, and have been important advocates in ensuring the fund is both adequately funded and accessible for the many New Jersey residents that need it.

Currently, families can apply to the Catastrophic Fund to purchase a modified van so that they can safely transport their medically fragile child. However, current regulations require that families pay for the van upfront and wait to be reimbursed by the Fund. This stipulation presents a sincere barrier to transportation for families that cannot afford to front tens of thousands of dollars while they wait to be reimbursed.

Mary’s Law addresses this issue by requiring the Catastrophic Fund to provide direct payments for the purchases of specialized, modified motor vehicles. In addition, this legislation will increase the annual surcharge for New Jersey employers from $1.50 to $3.00 per employee to insure the Catastrophic Fund is adequately funded to meet the its purpose and demands.

“Medically fragile children like Mary deserve to travel safely and freely. This legislation ensures that children and their families receive the help they need regardless of their financial situations. Ever since Mary was born, I’ve been a staunch advocate for her needs and for better laws and policies, but I never thought advocacy could hit so close to home–Mary and our family are ecstatic that we can bring about change for all New Jersey’s children and families that need it,” said Tara.

Thank you to Tara and Mary for continuing to be effective advocates on access to transportation. GAO will continue to provide updates as the legislation progresses through New Jersey committees and chambers.

If you have questions about this legislation or how to get more involved in advocacy at BAYADA on behalf of yourself, a loved one, or your staff and clients, please contact advocacy@bayada.com today.

NJ: GAO Hits the Road to Meet with Service Offices Across the State

GAO Director Louise Lindenmeier (center) meets with the PAS office to learn about their struggles recruiting and retaining quality aides

Every year, the Government Affairs Office (GAO) travels the state to connect with our service offices about our legislative priorities and the importance of advocacy. Not only do these visits give us the opportunity to share the work we do to improve the state of home health care in New Jersey, but they also give us the unique chance to hear about the challenges you all often face in attempting to deliver the compassionate, excellent, and reliable care that our clients deserve.

Throughout our visits so far, we have been able to celebrate our collective successes and accomplishments. In 2018, our GAO Ambassadors and service office employees attended a number of district office visits and legislative receptions, and participated in phone banks, letter writing campaigns, and action alerts all in support of accomplishing legislative priorities that support our nurses, aides, clients, and families. Without your partnership and collaboration, we would be unable to deliver on our promise to act as the voice for BAYADA and its clients and employees.

GAO gets groovy with the PER office!

In addition to celebrating last year’s successes, we have worked together to identify ongoing challenges and to form our 2019 legislative priorities and strategies. As we’ve formed these priorities, it is clear that our grassroots efforts and your continued commitment to advocacy will be integral to achieving our goals.

Thank you to the many offices who have made the time to meet with us. In 2019, we will continue our outreach effort to accomplish our goal of meeting with 100% of our New Jersey service offices. If you’d like to learn more about our road show, our 2019 legislative priorities, or getting more involved in advocacy at BAYADA, contact advocacy@bayada.com.

A Season of Advocacy

Hearts for Home Care Ambassadors at the State Capitol

Over the past six months, GAO and our Hearts for Home Care Ambassadors have been busy advocating on behalf of BAYADA’s clients and employees. Here is a brief look at our advocacy efforts in 2018 so far:

-19 Hearts for Home Ambassadors met with over 60 NJ legislators during our 2nd Annual New Jersey Advocacy Week.

-25 Ambassadors attended the Assembly vote to advocate for the Parking Accessibility Bill

-All NJ ACSP offices participated in a letter writing campaign to the Governor’s Office. Thank you to the many clients and aides who advocated for themselves, and to the directors for facilitating this campaign!

-8,600 emails were sent to key legislators and to the Governor’s Office urging them to support our PCA Budget Resolution. Thank you to all office and field employees who took action!

If you are interested in becoming a Hearts for Home Care Ambassador, please contact Mike Sokoloski.

The Power of the PAC

When you think of the word “advocacy,” it may bring several different thoughts to your mind. Many think of our grassroots efforts, such as lobby days and action alert emails. You may thinkof a specific client who you advocate for every day in the work you do, or of a coworker who goes the extra mile to get involved. What may not immediately come to mind and what is equally important, however, are how our Political Action Committees (PACs) play a vital role in our advocacy efforts and our ability to affect change for our staff and clients by sharing our voices.

PACs are a tool that allow BAYADA to support our legislative champions who are supportive and sympathetic to our issues and the home care industry in general. In New Jersey in particular, we have supported 33 legislative events so far in 2018. These events, whether they are fundraisers, dinners, or meet-and-greets, give BAYADA an opportunity to even further engage with the legislators who are making laws that directly affect our clients and employees.

Christine Rios, Director of Morris Plains Pediatrics and our 2018 National Ambassador of the Year, knows first-hand the Power of the PAC:

Being a member of the PAC has given me the opportunity to attend numerous legislative events over the past several years. Attending these events repeatedly puts me front and center with the very legislators that are making decisions that directly affect our clients and employees every day. The more they see my face, the more likely they will remember me and the stories I’ve shared about our clients.. When they see that we support them as legislators, they will be more apt to support our issues in Trenton. The more we talk to them, the more confident and knowledgeable they will be about our issues. In terms of supporting our staff and clients, being a PAC member is priceless!

 Kim Flynn, a clinical manager at the WTP office, had similar experiences attending PAC-supported events. Through her attendance, she became more comfortable making sincere connections with her legislators, and those relationships in turn enabled her to urge them to support our legislative efforts, including advocating for rate adjustments and BAYADA’s Parking Placard bill.

Kim said, “I feel like I’m part of an exclusive club! The PAC has enabled me to meet my legislators and show them what home care means to their constituents. They really care about our issues, and the PAC gives us the face time required to really show them what we do for our clients.”

As BAYADA continues to grow to recruit more employees and care for more clients, it is becoming increasingly more important that we understand the power of advocacy in its totality. This means participation not only in grassroots efforts to educate our legislators about our issues, but also participation in PAC efforts which are vital in our ability to support our legislative champions.

All BAYADA employees are eligible to join the NJ PAC. Only full time, exempt, salaried employees are able to join BAYADA’s federal PAC due to regulations. Click here to join the PAC to support New Jersey legislators who support home care!

Parking Placard Bill Passes Legislature Unanimously!

Hearts for Home Care Ambassadors show up to support an important parking placard bill for NJ staff and clients

In many of the state’s concentrated communities, parking has presented nurses and the state’s most medically fragile individuals with a sincere barrier to care. In many areas, caregivers must possess permits to drive and park legally in restricted areas. However, even with these permits, our nurses often receive tickets or even have their cars towed.

To address this issue, GAO worked with Assemblywoman Carol Murphy to introduce the Parking Placard Bill, which will enable health care workers to obtain parking placards that will allow them to park overnight on restricted streets, overtime at parking meters, and on college campuses.

The bill recently passed both houses of the legislatures unanimously, and now awaits Governor Murphy’s signature. This bill will take effect 18 months after it is signed into law.

We could not have done this without your advocacy! Thank you to the many New Jersey Hearts for Home Care Ambassadors who went above and beyond in advocating for this important bill, which will help our staff and clients and save our service offices from paying unnecessary tickets and fees.

 

Approved State Budget Includes Reimbursement Rate Requirement

The New Jersey state legislature avoided a government shutdown when Governor Murphy signed the proposed budget into law late Sunday, July 1. The approved budget sets the state fee-for-service rate at $19.00 per hour and establishes a rate floor, which requires MCOs to reimburse home health care providers at no less than $16.00 an hour for personal care services.

GAO is continuing to work closely with legislators to further clarify the Personal Care Assistant (PCA) increase, which passed last year (A320). This clarification will address the direct and indirect costs that were overlooked by Governor Christie’s conditional veto last session. For more information, don’t hesitate to reach out to advocacy@bayada.com.

NJ Medicaid’s Steve Tunney Visits BAYADA for Presentation on MLTSS

On March 20, Steve Tunney and his team members from New Jersey Medicaid made the trip to the Contract Management Office (CMO) in Parsippany, NJ to present on the state’s Medicaid program, including Managed Long-Term Services and Supports (MLTSS), respite care, and provider relations.

This thoughtful and thorough presentation was helpful in ensuring that we continue to efficiently navigate state regulations and resources in our pursuit of delivering compassionate and reliable care to our clients and communities. Thank you to Steve Tunney, Joe Bongiovanni, and Geralyn Molinari for joining us!