Trump Signs RAISE Family Caregivers Act, Bringing Hope to Over 40 million Family Caregivers Nationwide

Last week President Donald Trump signed the RAISE Family Caregivers Act, which passed the US House on December 18th and the US Senate on January 9th with strong bipartisan support in each chamber. Despite the tenuous political landscape, it goes to show that there is strong understanding that nationally, more must be done to support the over 40 million family caregivers in the United States.

The Recognize, Assist, Include, Support, and Engage Family Caregivers Act of 2017—better known as the RAISE Family Caregivers Act—directs the Secretary of Health and Human Services to develop and maintain a national family caregiving strategy to address the needs of family caregivers. This plan must be developed within 18 months and the strategy must be updated every other year.

The act also establishes an advisory body that will bring together stakeholders from the private and public sectors to make recommendations that communities, providers, government and others may take to help caregivers. Some of the topics that will likely be addressed by the council include: respite services and options, workplace flexibility and financial security, and training support for navigating the healthcare system.

“The idea is to come up with best practices for health care providers and others, for employers to better support family caregivers and for government to better support family caregivers,” said Rhonda Richards, senior legislative representative of AARP. AARP championed the legislation, which received broad support from disability advocacy groups and other organizations, including the National Association for Home Care and Hospice (NAHC).

Senators Susan Collins (R-Maine) and Tammy Baldwin (D-Wisc.) were the bill’s primary sponsors in the Senate and the primary sponsor in the House was Rep. Gregg Harper (R-Miss.). Rep. Harper has real-life experience in the family caretaker role, having been caregiver to both his mother and his 28-year-old-son who suffers from Fragile X Syndrome.

According to AARP research, caregivers aged 50 and older who leave the workforce to care for a parent lose, on average, over $300,000 in wages and benefits over their lifetime. The financial, emotional and physical burden of caregiving is compounded by the nation’s aging population and the sharply shrinking “caregiver support ratio”- the number of potential family caregivers aged 45-64 for each person 80 and older. This legislation not only brings awareness to family caregiving issues, but will hopefully begin addressing the struggles that millions of family caregivers in our country face due to lack of support.

If you’d like to read about the RAISE Family Caregivers Act farther, Forbes has published a two-part series which focuses on the legislation’s specifics, and real life stories of the struggles of American caregivers.

*Update: The Alzheimer’s Impact Movement (AIM) released a fact sheet that contains information about the RAISE Family Caregivers Act and data specific to Alzheimer’s and dementia caregivers.

CMS Removes HHGM Proposal from Final 2018 Rule

Submitted by David Totaro, Chief Government Affairs Officer (GAO)

Our voices were heard. Thank you and high five to all of our BAYADA office and field employees who recently took action to voice concern about the federal Home Health Groupings Model (HHGM) proposal, which would have resulted in revenue reductions between 4.3% and 17% for BAYADA’s Home Health Specialty Practice. Such significant reductions would have impacted not only Home Health, but BAYADA as a whole.

Yesterday afternoon, the Centers for Medicare and Medicaid Services (CMS) formally indicated that 2018’s Payment Rule does not include the HHGM proposal. CMS indicated that it could not finalize the HHGM proposal at this time based on the comments received on the issue.

BAYADA employees sent more than 3,000 messages to members of Congress urging representatives and senators to take a stand against HHGM. BAYADA joined industry-wide action led by an unprecedented coordinated effort by the Partnership for Quality Home Health Care, Elevating Home and the National Association for Home Care and Hospice (NAHC). This effort spurred 50 US senators and 179 US representatives to reach out to CMS and the US Department of Health and Human Services (HHS) to caution against finalizing HHGM. Through BAYADA’s action on this issue and previous calls to action, BAYADA has shown itself to be one of the strongest advocacy teams in our industry.

While delaying the HHGM proposal does not indicate a permanent withdrawal, it is a clear victory for the home health and home care communities that took immediate action to stop the rule from becoming final. BAYADA and other industry stakeholders will continue to work with CMS to improve the payment model, including participating in discussions with the Congressional Committee on Ways and Means to finalize a potential legislative proposal.

Thank you for your reliability and your dedication to advocating on behalf of our staff and clients.