South Carolina Representative Garry Smith Visits Local Family to Learn How Home Care Impacts his Constituents

Rep. Garry Smith (left) visits home health care client Emma (held), mom Gina (right) and their in-home BAYDA nurse Danielle (second from left).
Rep. Garry Smith (left) visits home health care client Emma (held), mom Gina (right) and their in-home BAYDA nurse Danielle (second from left).

 

South Carolina State Representative Garry Smith (R, District 27) visited a local family in his district to learn how his constituents and many South Carolinian families rely on home care to keep their loved ones together at home and out of more expensive settings. Rep. Smith is one of the many legislators that Hearts for Home Care advocates bring into home care clients’ homes to show them how federal, state, and local policies affect home care recipients and their families.

During his visit, Rep. Smith met 21-month old BAYADA Home Health Care client Emma Ferguson, Emma’s mother Gina, and Emma’s in-home BAYADA Nurse Danielle Rian. Emma was born with a Chronic Lung Disease of Prematurity, which causes Emma to experience severe breathing problems, pain, and other symptoms. At her young age, Emma has already had several surgeries and currently still requires use of a Gastrostomy-Jejunostomy (G-J) Tube to assist with her feedings and medication management throughout the day. At birth, state Medicaid authorized Emma to receive private duty nursing (PDN) services in her home so that Emma can remain safely and comfortably at home with her mother.

In March, Emma’s PDN services were terminated when Medicaid determined that her skill level no longer qualified her to receive care in her home. From March until May, Emma attended a local day care facility for children with complex needs so that her mother could continue to work. During this time, Emma was hospitalized on several occasions and required ventilator support due to respiratory illness. In May 2018, Emma’s mother Gina reapplied for PDN services, and Emma was able to start receiving care at home again. Emma currently receives 32 hours of PDN services in her home, and since the reauthorization, she has not been readmitted to the hospital.

Emma’s mother Gina stated, “I’m grateful Rep. Smith was able to visit our home to see how Emma and other medically-complex children can grow up and thrive with in-home nursing. These kids deserve some normalcy in their lives, and I have seen first-hand how much better she does when she can be with me at home rather than in an institution. She only receives 32 hours a week, and this allows her to receive the care she needs in the best place–her home–and allows me to be able to work to support my family.”

After the home visit, Rep. Smith said, “visiting sweet Emma and her family has opened my eyes to what home care means to my constituents and to the many South Carolinians who depend on Medicaid home care to stay with their families and out of higher-cost settings. I look forward to exploring ways we can help keep families together while at the same time effectively managing the state’s budget.”

“One-on-one nursing services have allowed Emma to remain safely at home under the Medically Fragile Children’s Medicaid Nursing Waiver. This program is an alternative to nursing home placement at a lower cost to the state,” said Melissa Allman, Hearts for Home Care advocate and Director of Government Affairs for BAYADA. “In-home nursing care helps minimize deterioration and can prevent costly hospitalizations as staff can address subtle changes in the medical condition before it becomes serious. I hope that more legislators continue to learn about how cost-effective these services are to the state, and how valuable they are in keeping South Carolinian families together.”

Home visits like this one really give elected officials a better understanding of how their decisions on key issues like Medicaid impact real people who are seeking to remain safely at home with their families. To find out ways in which you can participate in a home visit with a local legislator, or other ways you can advocate, email advocacy@bayada.com.

Assemblywoman Speight Meets ESS Client on Home Visit

Assemblywoman Shanique Speight is new to the state legislature, which makes it all the more important to introduce her to home care right away.

Essex County State Assistive Care (ESS) Director Lisa Minnella and her Clinical Manager Bonnie Caterson arranged for the assemblywoman to meet one of their special clients, 92-year-old Ms. Tisdale. Ms. Tisdale lives in Assemblywoman Speight’s district and has no family in the area. She needs certified home health aide (CHHA) services to assist her with the tasks she cannot do and help her be as independent as she can be in her own home.

The assemblywoman was very happy to meet Ms. Tisdale and spend time learning more about how home care services benefit her constituents and keep so many seniors in their homes.

Picture: ESS Director Lisa Minnella and Assemblywoman Speight with Ms. Tisdale

PA Client Visit to Discuss BAYADA’s Advocacy Program

Submitted by Rick Hynick, Director, Client and Family Advocacy (GAO)

 On Friday, October 20, Chief Government Affairs Officer Dave Totaro and I met with adult Home Health Aide client, William Bezdziecki at his home near Wilkes Barre to discuss the BAYADA Hearts for Home Care program and different client advocacy opportunities.  Also, present at the meeting were William’s parents, Jack and Mary Lou Bezdziecki, Wilkes-Barre/Scranton (WBS) Clinical Manager Susan Youells, WBS CSM Kristie Spinello and Certified Nursing Assistant Gerald Stevenson.

NJ Client & Family Advocacy Manager Shares Her Own Client Experience During Recent Home Visit

Submitted by Tara Montague, Manager, Client and Family Advocacy, NJ (GAO)

I had the pleasure of hosting Carol Murphy, Assembly candidate in Legislative District 7, for a home visit to meet my daughter Mary.  As a 20 year long client of Mt. Laurel Pediatrics (MLP), Mary is the epitome of what home care can help families to achieve and we wanted Ms. Murphy to experience that first-hand.  Clinical Manager Chantel Denny and Administrative Coordinator Brooke Fitzpatrick discussed some of the challenging staffing issues that occur due to low reimbursement rates and difficulty attracting qualified nurses.  Registered Nurse Stacey Sutton shared some of the varied tasks that she performs in order to keep Mary healthy and safe at home and at school.  Ms. Murphy made a commitment, if elected to work with us to make home health care nursing a more attractive career option in the state.

Photo: Tara Montague, Client Mary, Carol Murphy

Summer Legislative Home Visits were a Success!

Submitted by Louise Lindenmeier, Director, Government Affairs (GAO)

Client and Family Advocacy in NJ are picking up speed. In the third quarter of 2017, we participated in four home visits with local legislators. This brings our totals for 2017 to nine home visits, one legislative round table, and one client district visit.

 

Hearts for Home Care Ambassador, Allison Nulton invited NJ state legislator Senator Thompson to a home visit for one of her clients from the TRP office. 

 

District 6 Assemblywoman Pamela Lampitt visited with 14 year old Mt. Laurel Pediatrics client Juan M and his mother, Carmen. 

 

 

Assemblyman Michael Patrick Carroll from District 25 visited the home of 20 year old PED client Lily Kaplan in Morristown. 

 

Dawn Moeller, mom to PED clients Zak and Tyler, invited Senator Cardinale into their home to share what it’s like to have not one, but two children who are medically fragile and require nursing care.

 

 

We have two visits already scheduled during the upcoming fourth quarter and a couple more pending.

 

If you’re interested in setting up a home visit for one of your clients, please contact Louise Lindenmeier or Tara Montague and we will be happy to assist you.

NC: Together We Get Results

Submitted by Lee Dobson, Area Director, NC Government Affairs (GAO)

Legislative successes, like the Medicaid rate increase for nursing last year and the home health aide increase this year, don’t magically happen.  Legislative successes start with an identified need — low Medicaid rates made it impossible to pay people what they are worth — and end with legislators supporting jobs in the community and keeping families together by investing in home health care.  Every step along the way, our Hearts for Home Care ambassadors carried our unified message to decision-makers.  Our cumulative actions over the years, including home and district visits, legislative round tables with lawmakers, responding to calls to action, attending lobby days, etc., made all the difference.  Individually and collectively our shared voices got results.  Join us to be a Heart for Home Care ambassador.

NJ Home Visit Sheds Light on Need for Home Health Aides

Submitted by Tara Montague, Manager, Client and Family Advocacy, NJ (GAO)

Perth Amboy (PER) Client Service Manager Julia Nelson and I had the pleasure of meeting with PER client Joseph P. and his mother Bernadette at their home in Manasquan.  We were joined by Assemblyman Edward Thomson and Director of Constituent Services Kerry Textor.  As a client in the Personal Care Assistant (PCA) Program, Joe told the Assemblyman how much he loved his home health aide Alice.  Bernadette shared that she is an 86 year old mother caring for her 57 year old son who has multiple sclerosis.  PCA services are vital to her ability to keep Joe at home as he wishes. Unfortunately, they are not always able to get someone to cover the hours authorized due to the difficulty of recruiting aides in the Monmouth County area.  The Assemblyman, who is new to the office, offered to look into what additional services or supports they may be entitled to in order for Joe to remain with his family.

Photo (left to right): Julia Nelson, Bernadette P, Tara Montague, Joseph P, Assemblyman Thomson
Photo (left to right): Julia Nelson, Bernadette P, Tara Montague, Joseph P, Assemblyman Thomson

U.S. Senate Aging Committee Staff Spends Day with BAYADA

Submitted by Laura Ness, Director, Government Affairs (GAO)

Recently, Samantha Koehler, policy aide to the U.S. Senate Special Committee on Aging for ranking member U.S. Senator Bob Casey, and Vicki Hoak, Executive Director of the Pennsylvania Homecare Association, spent the day in Philadelphia with BAYADA Home Health Care.  During her time with us, Samantha spent time learning about the inner workings of our service office and went on two home visits, one to an assistive care state programs client and another to a hospice client.

During Samantha’s visit, we discussed the most recent issues to impact home care in Pennsylvania including the institutional bias that still exists, the challenges with the recent proposal to block grant or institute per-capita caps to Medicaid, and the harmful proposed home health groupings rule.

Samantha loved getting to spend some time with Ms. Lenora E. and her aide Kimyatta J. Ms. E has been a BAYADA client for over a year and gets nine hours of care a day.  She is served by the Philadelphia Corporation of Aging (PCA) office. She also met Florence G., a 101-year-old heart patient who can remain at home with her daughter because of the care we deliver. She loves her Clinical Manager Faith Brown almost as much as she loves her children, grandchildren, great-grandchildren, and great-great grandchildren. Grace is served out of the Pennsylvania Media Hospice (PMH) office.

A big thank you to the PCA and PMH staff for hosting Samantha!

Executive Director of PHA Vicki Hoak, BAYADA Aide Kimyatta J., BAYADA Client Lenora E. and Policy Aide Samantha Koehler sit and discuss home care.

Saying Goodbye to a Champion

Submitted by Lee Dobson, Area Director, Government Affairs (GAO)

Republican Sen. Tommy Tucker of Union County announced that he won’t seek a fifth term in 2018.  Sen. Tucker co-chairs the influential Senate Finance Committee. “I have long believed in term limits for judges and politicians,” he said in a statement to the Charlotte Observer. “After serving four terms in the N.C. Senate, the time has come for me to allow others to step in and serve Union County and our state.”

Our relationship with Sen. Tucker started back in 2011 when Hearts for Home Care Ambassador John Morris and I visited with him in his district office to introduce him to BAYADA and home care.  That visit led to a home visit where he was able to see first-hand the impact home care has on his constituent.  Over the years and as he rose through the ranks, we met with Sen. Tucker numerous times, attended legislative receptions for him, as well as, visited with him at Lobby Days.  His door is always open for BAYADA.  He was instrumental in ensuring the CAP-C rate increase for nursing was put in the Senate’s budget and that it was ultimately passed.  Sen. Tucker was BAYADA’s Legislator of the Year 2016. We thank Sen. Tucker for his commitment and support of our staff and clients.  His vision and leadership will be missed.

LaToya, Jackie, Tanner, and Melissa at Legislative Day with Sen. Tucker receiving the BAYADA Legislator of the Year Award

Aides Cried Tears of Joy for Much-deserved Raises throughout North Carolina’s Assistive Care State Programs Offices

Submitted by Lee Dobson, Area Director, NC Government Affairs (GAO) and Shannon McCarson, Regional Director, Dogwood Group (DOG)

We worked together and made it possible. After many years of advocating for higher reimbursement rates within the state Medicaid programs, we finally received an increase in the hourly rate for personal care services (PCS). This achievement was made possible through the persistent advocacy efforts of our employees, clients, families, and government affairs team. Our Hearts for Home Care Advocates participated in email campaigns, home visits, legislative roundtables, home care lobby days in Raleigh, and professional lobbying efforts.

As a result of working together, this week assistive care state programs directors throughout the state were thrilled to pass along an increase to our deserving CNAs and HHAs who care for our Medicaid clients and have stuck with us through thick and thin.

Directors have been personally speaking to staff to share the great news. “One by one, as I spoke to our aides, I heard the same thing – gratitude, appreciation, tears of joy, and, yes relief, too,” said Mimosa (MIM) Division Director Joe Seidel. “The low Medicaid reimbursement rate made it impossible to pay more. I am glad to do it now.” This rate increase is a good place to start, and more needs to be done.

Let’s keep the momentum going by joining to be a Hearts for Home Care Advocate. We believe our aides deserve even more for the important work they do in keeping our clients safe at home. If you are not already part of our advocacy group, join today at heartsforhomecare.com to receive alerts that could influence future efforts to increase pay rates.