A Day in the Life of a Massachusetts Mom/Advocate

Submitted by Rick Hynick, Director, Client and Family Advocacy

On February 27, several BAYADA employees, home health care family members and others working toward getting a patient bill of rights passed, gathered at the state house in Boston to meet with legislators.  Lisa B. was en-route with her son, an adult home care client in his early 30s, and his son’s nurse.  Their goal for the day was to speak with different elected officials about the need for a rate increase for continuous skilled nursing services and to advocate for a patient bill of rights that is making its way through the legislative system toward becoming a law.  Just four miles from the state house, Lisa and the nurse saw that her son’s medical condition had changed and they quickly pulled their van over near the outskirts of a public park to help him.  He was struggling to breath due to a mucous plug.  In addition to this, he had lost control of his bowels.  As they pulled off the road, it happened to be near where an undercover police officer was working.  Startled by their presence, the officer approached them.  It took a bit, but Lisa and the nurse were able to clear the plug and get him back to a normal status.  They also changed his clothing and got everything back to normal.  The police officer was so motivated to help the family that he provided them with a police escort to the state house.  As a result of their dedication to the greater cause of helping people with special medical needs, they were still able to meet with senators and representatives and discuss the importance of home care nursing and the patient bill of rights from the perspective of the family.

Home Visit Shows Need For Home Care To NJ Legislator

Submitted by Tara Montague, Manager, NJ Client and Family Advocacy (GAO)

Through the efforts of Hearts for Homecare Ambassador and Director Rose Sample, State Senator Nilsa Cruz-Perez made a visit to the home of Cherry Hill Pediatric client, Lindsay H. The Senator had the opportunity to meet Lindsay and her mother, Debbie, as well as some of the Pediatric Cherry Hill office staff and Susan Stout, one of the nurses who helps to take care of Lindsay.

According to Rose, both the client’s mom Debbie and nurse Susan were just blown away by the Senator’s compassion and concern.  The Senator and Lindsay’s mom connected on a number of levels.  Senator Cruz-Perez thanked everyone repeatedly and said it made her week to be there.  In follow-up from the meeting with Lindsay’s mom, Debbie shared that, “She seemed like a wonderful and sincere person, and I feel so fortunate to have had the chance to get to know her and share stories.”

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Senator Nilsa Cruz-Perez, our client’s mother Debbie H., Rose Sample, Clinical Manager Kara Leahy (pink jacket), Nurse Susan Stout, and our client Lindsay H.

BAYADA Sponsors Second Lobby Day in Massachusetts

Submitted by Laura Ness, Director, Government Affairs (GAO)

The Government Affairs Office (GAO) organized a second lobby day for continuous skilled nursing providers and parents to discuss our Patient Bill of Rights.  With over 27 meetings scheduled, we focused on meeting with our legislators that sit on important committees and introduced our need to file a budget amendment to support the increased reimbursement rate needed to compete for a median of nurses.  The day was successful, as we lined up House and Senate budget amendment sponsors and additional co-sponsors for the bill.  As stated by the lobbyists from the Home Care Alliance of Massachusetts, we “have set a solid foundation to build upon.” Next, we wait to see where the House will assign the bill and wait for a budget hearing.

Community Home Care Support Group Meeting A Success In Hazleton, PA

Submitted by Rick Hynick, Director, Client and Family Advocacy

Photo: Attendees of the support group meeting

On February 23, BAYADA sponsored a community client and family home care support group meeting at a hotel in West Hazleton, PA.  Parents, grandparents, home care staff and healthcare advocacy groups from different sectors of the community were all in attendance.  State Representative Tarah Toohil was the special guest speaker and was involved in an interactive discussion with everyone in attendance.   Families caring for loved ones with special medical needs had the opportunity to network and talk with other advocates and family members and learn of new ideas.  One of the main topics of discussion revolved around the need for more nurses in home health care.  The group is going to stay in contact through an email platform and share ideas, new events and information and reconvene in the spring at the next meeting.

Community Home Care Support Group Meeting A Success In Hazleton, PA

Submitted by Rick Hynick, Director, Client and Family Advocacy

On February 23, BAYADA sponsored a community client and family home care support group meeting at a hotel in West Hazleton, PA.  Parents, grandparents, home care staff and health care advocacy groups from different sectors of the community were all in attendance.  State Representative Tarah Toohil was the special guest speaker and was involved in an interactive discussion with everyone in attendance.   Families caring for loved ones with special medical needs had the opportunity to network and talk with other advocates and family members and learn of new ideas.  One of the main topics of discussion revolved around the need for more nurses in home health care.  The group is going to stay in contact through an email platform and share ideas, new events and information and reconvene in the spring at the next meeting.

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Attendees of the support group meeting

BAYADA Sponsors Second Lobby Day in Massachusetts

Submitted by Laura Ness, Director, Government Affairs (GAO)

The Government Affairs Office (GAO) organized a second lobby day for continuous skilled nursing providers and parents to discuss our Patient Bill of Rights.  With over 27 meetings scheduled, we focused on meeting with our legislators that sit on important committees and introduced our need to file a budget amendment to support the increased reimbursement rate needed to compete for a median of nurses.  The day was successful, as we lined up House and Senate budget amendment sponsors and additional co-sponsors for the bill.  As stated by the lobbyists from the Home Care Alliance of Massachusetts, we “have set a solid foundation to build upon.” Next, we wait to see where the House will assign the bill and wait for a budget hearing.

CRO Division Uniting With Philadelphia Families In Advocacy

Submitted by Rick Hynick, Director, Client and Family Advocacy

Director of Government Affairs in Pennsylvania Laura Ness and I met with Division Director Kevin Kuzmick and several of the service office directors from the CRO division at the Government Affairs Office (GAO) this past Wednesday.  The meeting focused on the development of advocacy efforts for the clients and families who receive assistive care services from the Office of Long Term Living waiver in the Philadelphia area service offices.  An exciting outcome from the meeting was the idea of having a “family day” in the Philadelphia area where our families and staff can advocate for a better tomorrow.

Client Advocacy Gains Ground in NJ and PA

Submitted by Tara Montague, Manager, Client and Family Advocacy, NJ and Rick Hynick, Director, Client and Family Advocacy

Client and Family Advocacy Manager Tara Montague has been busy visiting service offices with Government Affairs Office (GAO) Director Louise Lindenmeier to talk about client and family advocacy and the Hearts for Home Care program. So far, we’ve managed to visit with nine offices with more being scheduled every day.

Additionally, on January 27, GAO Director Rick Hynick had the pleasure of meeting with Kim Minor, Pennsylvania’s Northeast Regional Coordinator for the Special Kids Network (SKN). SKN helps to identify services for children and families who care for individuals with physical, developmental, behavioral, and emotional needs. Supporting families in overcoming their challenges by utilizing community support services is a large part of what SKN accomplishes on a daily basis. SKN will be working with BAYADA by promoting home care advocacy as they will be attending and taking part in our community home care support group meetings.

Overall, our offices are excited about having our clients be more involved in our advocacy efforts and supporting our legislative visits.

 

 

 

Landmark Legislation Introduced in Massachusetts

Submitted by Laura Ness, Director, Government Affairs (GAO)

Last week, BAYADA’s Government Affairs Office (GAO) along with the Boston Pediatrics office, helped host a lobby day for providers, support organizations, and family coalition members.  The purpose of the legislation was to introduce a patient bill of rights for the medically complex population receiving continuous skilled nursing services and to obtain co-sponsors.  The event was well attended by over 100 individuals and many legislators and staff.  During the lobby day, we had meetings with over 50 legislators and visited every office in the legislature to drop off our packet about the bill. We were also fortunate to have the Boston Globe cover our Lobby Day!  To date, we have over a dozen legislators that have signed onto the bill. Parents and supporters who were unable to be at the lobby day in person sent over 400 emails to legislators.  Click here for the full text and to see what your colleagues have said about the article:

Join the conversation: #mychildcantwait

Photo: Those in attendance at the lobby day.

Exciting Opportunities Lie Ahead in Client and Family Advocacy

Submitted by Tara Montague, Manager, NJ Client and Family Advocacy (GAO)

BAYADA’s Client and Family Advocacy team has been working diligently to set the stage for our efforts in client and family advocacy in PA and NJ.  Collecting client and family stories through our Hearts for Home Care platform is a vital part of our strategy.  We will be sharing these stories with legislators through client home visits, roundtables, and advocacy groups to help legislators increase their understanding of the issues facing families, and to secure their support for home health care.