In New Hampshire, Home Care Advocacy Brings Results

BAYADA Home Health Care’s pediatric client G (Gina) with her her nurse Laura.

While much of the home health care community continued to reel from the onslaught of challenges faced from the COVID-19 pandemic, Hearts for Home Care advocate and BAYADA Home Health Care office director Cathy Slack has remained focused on the many positives. Namely, throughout the pandemic, she witnessed many caregivers, office staff, clients, and families advocate for better access to care, and also witnessed the state government’s response to hearing these voices.

One of the major wins that New Hampshire’s home care community saw as a result of their continued advocacy was the development of the Long-Term Care Stabilization Stipend Program (LTCSS), which served to borrow money from the state’s General Fund in order to offer stipends to essential healthcare staff to continue to work throughout the pandemic.

The state’s actions created an incredible domino effect that kept the positive changes coming. In Cathy’s office, coverage hours and the number of employed nurses both increased as RNs and LPNs transferred their passion for caregiving from their usual settings to the home care community. One such example is former full-time school nurse Laura Walker, who came to home care full-time after COVID suddenly halted normal school activity. Her transition was an immense positive for both Laura and her pediatric client, G, and G’s family. Laura’s care enabled them to feel security and peace-of-mind as G’s medical and academic routine suddenly flipped without warning.

“One day my medically fragile, intellectually disabled child went to school every day from 8 am to 3 pm where she was cared for by a nursing team and then came home to nursing services from the time she got off the bus until she went to bed. G’s school transferred to remote learning seamlessly, but how would my daughter respond to this new way of learning?” said G’s mom Michele. “My biggest concerns were: would she remain engaged without the school nurse keeping her safe, and how would she remain healthy at home with this gap in medical services? This is where Laura stepped up and went above and beyond.”

“These nurses put their own safety on the line to not stay home every day but to come out and care for our child. The stipend they earned through the state’s program was well deserved and I am grateful as a parent and a citizen of New Hampshire that the monetary recognition was given,” says Michele.

Michelle’s testimony is one of many that shows how medically-fragile families were given a lifeline through LTCSS during a time of uncertainty. Thank you to the many Hearts for Home Care Advocates, and to the State of New Hampshire, for making this lifeline available to the many residents that need home care to stay safe and healthy at home. To find out more about how Hearts for Home Care operates in New Hampshire or elsewhere, contact us at advocacy@bayada.com.

2019 National Ambassador of the Year: Shelby Myers

Advocacy became part of the culture at BAYADA Home Health Care a little over 10 years ago out of a need for a collective voice to speak on behalf of our clients, families, and field staff who are impacted every day by home care. As Chief Government Affairs Officer Dave Totaro, likes to say, “If you want to go fast, go alone. If you want to go far, go together.” And that’s what we did. We banded together a voluntary group of advocates within the company with the single purpose of acting as a voice for those in the home care community that may not have had the opportunity otherwise ─ they are our Hearts for Home Care Ambassadors. 

Our ambassadors serve as the liaison between the Hearts for Home Care advocacy team and their co-workers and home care community. Their primary responsibility is to develop and foster relationships with their direct-constituent legislators to spread awareness and advocate for better wages for field staff, more approved hours for clients, and the overall governmental investment in the home care industry. Year after year, our ambassadors go above and beyond to ensure legislators are aware of the crucial importance of home care for so many families across the country. 

A few weeks ago, Hearts for Home Care presented the 2019 National Ambassador of the Year award to Shelby Myers for her role as a dedicated, passionate, and influential ambassador. As an ambassador in New Jersey, Shelby’s advocacy efforts were abundant ─ She developed her own platform to share client and employee stories through a podcast, Clayton’s Voice, she arranged home visits in which she invited legislators into the home of a client to showcase the everyday process of care, she arranged legislative roundtables with office staff and key decision makers, and she also met with many legislators individually advocating on her own.  For these reasons and many more, Shelby was the clear choice as the 2019 honoree.

Shelby Myers:

“This award is truly a culmination of efforts by so many individuals. Although I humbly accept it, by no means am I the primary recipient – that honor should be given to the families I was privileged to represent. Their powerful and sometimes heartbreaking stories, were the driving force behind legislation in New Jersey. I have no doubt that their voices were echoed in the ears of our lawmakers as they were voting on important home care legislation. Our role as ambassadors is essential to the well-being of our clients, families, and the compassionate field staff that takes care of them. Hearts for Home Care offers something that many of them have lost – hope. H4HC shifts the impossibility of their situation to a probability of hopeful change. Not only can we evoke change legislatively, but we empower families by showing how even the smallest of voices can create the largest of changes ─ I truly held this privilege in the highest regard. As Emerson so eloquently expressed in his description of success, “To know even one life has breathed easier because you have lived. This is to have succeeded!” I feel enormously blessed and grateful for every family I met, every story I heard, and every hand I held this past year. Additionally, I want to thank all of the BAYADA employees who gave me the opportunity to meet their clients and families, to the Hearts for Home Care team for the advocacy experiences you foster to elicit change, and to all of my mentors – thank you for changing my life.”

Advocacy Essential to Clearing Up New Jersey Home Care Funding Uncertainty

New Jersey Troy Singleton meets with home care advocates from BAYADA - Personal Care Assistant (PCA) program funding and minimum wage
Hearts for Home Care advocates share the importance of home care with NJ Senator Troy Singleton

The COVID-19 pandemic has brought about changes in almost every facet of society. Impacted most severely has been our aging and elderly populations. The home care community has certainly felt the shock wave from this pandemic across all aspects of client care and operations, but in the hardest hit states such as New Jersey, the fate of home care looms.

As New Jerseyans continue to adapt to and understand the effects of this virus, one of the key takeaways has been the value and safety that New Jersey’s Personal Care Assistant (PCA) program provides. The PCA program allows New Jersey residents to stay independent, safe, and healthy in their homes. Simultaneously, this level of care diverts these often infection-prone clients from more congested group settings and nursing home placements, while saving the state tens of thousands of dollars a year per individual.

Currently, the PCA program faces funding uncertainty on the horizon as New Jersey is set to increase the state minimum wage to $12/hr. on January 1. However, the state has yet to permanently commit to adequate increases in PCA funding. State funding covers not only personal care assistant wages, but also training, benefits, and supplies. Compounding this issue, COVID-19 has driven up the costs across all fields of business including expensive PPE and adequate compensation for our frontline workers that provide this vital service.  

What is the solution? Well, as Dr. Seuss once said in The Lorax, “Unless someone like you cares a whole awful lot, nothing is going to get better. It’s not.” Advocacy is the solution. It is evidently clear how essential home care is to so many medically fragile individuals − it is the saving grace that allows these residents to stay safe, healthy, and happy in the place they feel most comfortable. However, many decision-makers are not always aware of how crucial a program like PCA is to their constituents.

This is where advocacy plays such a significant role in raising awareness around the value of home care. Personal stories from clients, families, and employees highlight the compassion and care that the PCA program provides, while best contextualizing the benefits of the program to legislators. If you, or someone you know has been benefited from home care, please reach out to your legislator and urge them to support adequate funding to the PCA program. It is imperative that the state addresses this funding shortfall so that agencies can continue to attract and retain the high-quality home health aides that keep elderly and medically fragile New Jerseyans well-cared for in the comfort of their own homes.

Grassroots Advocacy: GAO Ambassador Program Completes an Expansive and Record-Breaking 2019!

Southeastern Ambassador Academy 2020: BAYADA’s Hearts for Home Care Ambassador program has been growing steadily each year

Each year, more and more of GAO’s efforts are successful due to the increase of our collective voice: That is, the united voice of our clients, families, employees, and industry partners. GAO staff can only do so much alone—it is our Hearts for Home Care (H4HC) Ambassadors and advocates who help to bring the message to legislators loud and clear.

And our Ambassador program continues to grow every year. In 2019, 335 BAYADA employees and caregivers served as Ambassadors—a 28% growth over 2018! Not only is the Ambassador program growing and expanding each year, the culture of advocacy is growing across the company. That is, Ambassadors are increasingly getting their coworkers and clients involved in advocacy efforts, and BAYADA and the home health care industry as a whole are seeing how their voices help make a significant impact.

In 2019, GAO saw a major expansion of the Ambassador program. Traditionally, each GAO state director would host an annual Ambassador Training day. After extensive research and development, GAO expanded and enhanced the program by hosting seven revamped on-site Ambassador academies, ten 30-minute educational Ambassador zoom sessions, and eight on-boarding sessions for new Ambassadors. Additionally, GAO developed the curriculum for, and hosted, the first-ever Advocacy Bootcamp during the National Association for Home Care and Hospice (NAHC) annual conference in Seattle, Washington. Here, GAO taught and trained other providers on BAYADA’s “best-in-the-industry” grassroots advocacy program.

The Ambassador program continues to grow every year in number and in recognition. In 2019, BAYADA’s grassroots and Ambassador programs were recognized as one of the most impactful in the entire home care industry. In 2019, Ambassadors continued to lead home visits, legislative roundtables, and office visits with legislators.

THANK YOU to all our Ambassadors
We would not be successful without you!

Help us access the nursing care we need: Indiana Mom Annie Shares Her Voice with RTV6, and wih Lawmakers

Indiana families like the Goellers are struggling to access the in-home nursing care they need to keep their medically-complex children safe at home

Indiana moms are coming out to share their message with State decisionmakers: “Help us access the nursing care we need!” Recently, RTV6—Indianapolis’s ABC affiliate—aired coverage of mom Annie and her daughter Emma. Emma, and more than 14,000 like her across the state, rely on skilled nursing to live safely at home, but often struggle to access it. The State has until June 30 to make a decision to help alleviate families’ struggles by increasing funding for state programs that pay for in-home nursing coverage.

The issue lies in State funding for programs that allow families like the Goellers to access the skilled in-home nursing they need. Because nurses can make more money in hospitals, rehab centers, and other facilities, nurses are more attracted to those settings rather than home care. The constant turnover creates a revolving door of nurses. In the past six years, Emma, who has cerebral palsy, has had dozens of different nurses. “I would say probably at least 20 or 25,” said mom Annie.

Such turnover means that Emma doesn’t see reliable, consistent nursing coverage, which puts her at risk. For many families, this also means that shifts are missed and parents must bear the burden of providing care. Lack of sleep, calling out of work, and being unable to care for other family members are all unintended consequences that come from the lack of skilled in-home nurses.

No child deserves to grow up in a hospital or facility, and no parent deserves to be an untrained nurse for their child. When we unite our voices in advocacy, we can make sure that our message is heard and that decision-makers and key influencers are aware of the issues that they have the power to make changes on. Contact advocacy@bayada.com to learn about how you can share your story and make an impact today.

Delaware Hearts for Home Care Advocate Shares Heartfelt and Impactful Story with Legislators!

Recently, a Delaware pediatric licensed practical nurse (LPN), Charlene Chappell, signed up for Hearts for Home Care and wanted to get involved. And did she come out in full force!

After sharing powerful and heartfelt testimony in Dover, DE’s Legislative Hall about the impact she makes on families and the challenges low Medicaid rates bring to nurses who want to provide one-on-one care to families at home, Charlene listened to a radio show where host Joel Olsteen spoke about “an itch you just can’t scratch.”

That got Charlene thinking about more advocacy. Charlene said, “I feel that the majority of men and women that serve as elected officials have no clue what’s required of a family when they have a child that has special needs and is differently abled! They don’t understand that nurses need to be attracted to home care so that families can rely on this care to keep their medically-complex children at home.”

That inspired her to write the below story and send it to all Delaware legislators. Read Charlene’s powerful story below!

My Itch!

I have an itch! Mo matter how hard I try to let someone know, I can’t.  I’m 8 years old and I can’t tell Mommy where I itch! I can’t reach my itch! Its 2:30 in the morning and Mommy has fallen asleep in the chair next to my bed because she had to work today and then take my sister to her dance lesson. When she finally arrived home she threw some dirty laundry in the washer, and cooked dinner. After dinner she put the wash in the dryer, and then she loaded the dishwasher. She came in my room to check on me and feed me. Off she went to make sure my sister had done her homework and was in the shower. Oh no, an alarm is going off! Here comes Mommy. I wish I could tell her how much I love her for all she does and about my itch. She looks so tired. It’s almost 8:00 pm. The phone is ringing. Hurry Mommy before they hang up!

I can hear Mommy on the phone. “What! Oh no, please tell me it’s not true. I’m so tired tonight. I don’t know if I can stay up all night with him but I must. I have to make sure he’s ok on his ventilator and his medications are given at the right time, so he doesn’t have a seizure, and that the tube feeding is running properly. He has to be repositioned every two hours so his skin doesn’t break down. I have to check his diaper too. Well… thanks for the phone call.”

Oh no. Mommy just found out my favorite night nurse called out tonight, and the rest of forever. The agency is going to try and find a replacement as soon as possible, but that may take some time. Nurses aren’t as anxious to get into home health care nursing because they can make more money at a hospital. Mommy is going to miss work because she will have to stay up with me as Daddy’s gone from home with his job right now. Mommy may lose her job. I’m so sad my nurse left. She really knew me and she knew when I had an itch. She would gently scratch me all over till she found it, like Mommy does. She understands my cues and my facial expressions as I can’t talk, or walk, or move because of my illness. 

I heard Mommy talking to the lady at the agency about the nursing shortage in home health care. She told Mommy that the money provided for reimbursement by Medicaid, not Medicare, has not increased in 13 years! The last time there was an increase in Medicaid was in 2006! I wasn’t even born then! She also told Mommy that the companies are running out of their own funds to supply the raises the nurses deserve. God bless the nurses that do work in home health care, for a lesser wage then they deserve, and take care of not only me but my mommy and Daddy too. Without them my Mommy and Daddy would not get the proper rest, would have to quit work to care for me. It would not be a good thing for my family. We would all suffer. I don’t want to go anywhere but here in my room. What if we can’t find a new night nurse? Where will I go? I overheard the doctors and nurses at the hospital talking last time I was admitted for a bad seizure and they said that all children do better in the home setting for getting well once they can leave the hospital. They are less likely to get sick again from a disease they acquired while in the hospital, and all of us are more comfortable in our own bed!

I hope my story has helped you to understand why we need to increase the Medicaid budget. Not Medicare, but Medicaid. Mommy told me that some people get confused so that’s why I will say it one more time. Please increase the Medicaid funding for home health care nurses.

Thank you for reading this. Mommy thanks you as well as all the other children and their parents that require specialized home health care nursing.  And yes, Mommy found my itch!

Thank you, Charlene, for sharing your creative and passionate story with Delaware’s legislators. We must all share our voice to make an impact, and your advocacy highlights your deep commitment to your clients’ care.

Hearts for Home Care is seeking to advocate for higher reimbursement rates for skilled nursing services in Delaware so that nurses can be better attracted to home care, and so families that need this care to stay together at home can more easily and reliably access it. For information on how you can get involved, contact us today

Advocates in Action: Dimpal Patel Inspires NC Ambassadors at Ambassador Symposium

Client Dimpal P. inspires Ambassadors during North Carolina’s Ambassador Symposium

On March 28, our annual North Carolina Hearts for Home Care Ambassador Symposium took place, where we provided tools and resources to our volunteer Ambassadors. The training focused on a variety of topics, including leading a legislative meeting and building relationships with lawmakers. 

In addition to special guests former Representative Bill Brawley, Senior Healthcare Campaign Director of MomsRising Felicia Burnett, Association for Home & Hospice Care’s VP of Government Affairs Tracy Colvard, and Staff Attorney with Charlotte Center for Legal Advocacy Louise Pocock, the shining star of the Symposium was client Dimpal, who inspired all of our Ambassadors with her story of her journey into advocacy.

Beyond detailing the specific challenges she and her family face as a result of low state Medicaid reimbursement rates, Dimpal also described the ways in which home care and her nurses have changed her life and granted her independence:

“Without my nurses, I wouldn’t have been able to go to college and to live a full life. Without them, I’d likely be stuck in a hospital or a nursing home,” said Dimpal.  

It was this gratitude for her nurses that propelled Dimpal to share her story and to advocate for others who rely on the state’s Private Duty Nursing (PDN) program to survive.

To hear more about Dimpal and the importance of advocacy, you can watch her full speech here. You can also read about her nursing care in the Gaston Gazette after a reporter came to her house to learn more about how her nurses impact her everyday life.

Special thanks to our Hearts for Home Care Ambassadors for volunteering their time and talents advocating for our staff and clients!

To learn about ways you can get involved in advocacy, email advocacy@bayada.com today

Pennsylvania Homecare Association (PHA) Legislative Day Pictures

On April 9, more than 300 home care advocates—clients, families, caregivers, and employees—joined the Pennsylvania Homecare Association (PHA) at the state capitol in Harrisburg. Advocates met with hundreds of the state’s representatives and senators to deliver an important message: Home care is important to me, and it should be important to you too.

Check out pictures from the legislative reception, the kickoff rally, legislative day meetings, and the PHA press conference! Care about home care and want to share your voice? Check out heartsforhomecare.com or email advocacy@bayada.com to find out how you can get involved in advocacy today!

CLICK TO SEE PICTURES

Across the Country, Parents and Home Care Supporters Advocate for Better Wages for Caregivers

We know the struggles families can face with home care: The call-outs and missed shifts, the lack of sleep, the caregivers who are like family but can’t afford to make their own ends meet, and the frustration that comes when you or your loved one can’t access the care that is deemed medically necessary. We also know the value and impact that sharing our voices has.

Recently, home care advocates have made the news for their efforts across the country. Specifically, on December 28, the Washington Post covered the impact that providers and parents are having in driving public awareness of the struggles that Marylanders and Virginians are having in accessing the skilled nursing home care their families need.

Washington Post reporter Tara Bahrampour points to low reimbursement rates in both states as the major issue contributing to families’ struggles—

“The reason lies in a stark state-by-state discrepancy in the pay in-home nurses receive through Medicaid. Maryland and Virginia have set reimbursement rates significantly lower than surrounding jurisdictions…As a result, licensed practical nurses [LPNs] are finding more lucrative positions out of state or at hospitals or other care institutions that pay more, leaving many homebound Medicaid patients without services.”

Hearts for Home Care has been leading the charge in Maryland, where a coalition of home care clients, parents, providers, and other advocates are pushing for a 25 percent increase for skilled home nursing services. Advocates say that this increase—half of which would have to come from state coffers—would serve to alleviate families’ inability to access care an average of 17 percent of the time, as reported by the state’s Department of Health. Hearts for Home Care advocate and BAYADA Home Health Care director Shannon Gahs says:

“Maryland is failing its citizens who have significant medical disabilities. Failing to provide care 17 percent of the time not only creates a dangerous situation for the person who relies on that care—it harms his or her family. Parents are calling out of work and losing the sleep they need to stay healthy to support their family. They’re doing everything they can to keep their family members safe, but this is not how it is supposed to be. We have to do better.”

In comparison, neighboring Delaware found that shifts are missed 7 percent of the time. There, the state reimburses providers at a rate approximately 30 percent higher for LPN home care services.

In California, Governor Jerry Brown recently proposed a whopping 50 percent wage increase for home care nurses—a move that advocates have pushed for over the past several years. As with families across the country, Californians who require skilled nursing home care have been struggling to get nursing care for their loved ones. Advocates report that under Medi-Cal—the state’s health care system for low income and disabled Californians—rates have not been addressed in 18 years.

While both the Maryland and California proposals are still pending, home care advocates have been successful in driving public and legislative awareness of low reimbursement rates and the impact on families’ access across the country in recent years. Most recently, the home care industry has seen reimbursement rate increases in Rhode Island, Massachusetts, South Carolina, and New Jersey among other states. It starts with educating legislators through advocacy via any number of channels: Traditional and social media, letters, phone calls, meetings, and more.

While advocacy can seem like an intimidating activity to many who do not yet engage in it, it’s important that we share our advocacy wins with the home care and health care community at-large. As illustrated in recent news, when we band together to leverage our voices in unison, big changes can happen. It’s important to take that first step and make your message heard on behalf of the millions of Americans that rely on home care.

To learn more about how you can engage in home care advocacy, visit www.heartsforhomecare.com or email advocacy@bayada.com today.

Rhode Island Rep. Casimiro Visits BAYADA Office to Learn about Home Care and SIM lab.

Thank you to our newest Hearts for Home Care Ambassadors, CSM Beth Schenck and Director Courtney Donald, for your coordination of an impactful legislative roundtable and office tour with Representative Julie Casimiro (D-North Kingstown, Exeter)! An additional thanks to Clinical Educator Cristina Gomes, Associate Sabrina Soares, and the RIS, RSP, and RAC offices!

After greeting everyone in the office, Rep. Casimiro walked through all of the BAYADA Rhode Island offices with a sense of curiosity and helpfulness.  She asked about the services we provide, where our clients and employees are located, and the challenges we face.

Cristina Gomes took Rep. Casimiro into the Rhode Island Skilled Pediatric SIM Lab to demonstrate the sophisticated training we offer and how we use it to support our nurses and clients in the home. Cristina explained each piece of equipment and provided scenarios where she has been able to successfully use the lab, as well as virtual and in-home training to advance nurses, skills to care for medically complex children outside of a facility of hospital setting.  She explained how we reevaluate each nurses skills annually and provide ongoing support as needed to make sure our nurses are confident, competent and prepared for any emergency.

We stood in front of the large white board with all of our open shifts, while she skimmed the cities and noticed there were in fact several pediatric clients in her District who are not currently receiving all of the PDN nursing services they are authorized for.  She was determined to find out why this is happening and how she can help everyone on that board.  The office staff explained that because the reimbursement rates for Medicaid mean that nurses pay rates at home are significantly lower than what they can earn in a hospital or facility.  Even Massachusetts rates are approximately 40 percent higher than in RI, so our state’s nurses are traveling across state lines to care for people in other states instead of staying her to care for our vulnerable Rhode Islanders.  It was clear that Rep. Casimiro completely understood the issue while we walked away from the board, towards the SIM Lab – she was shaking her head and said “How can I help? I want to help fix this”

Rep. Casimiro not only asked detailed and thoughtful questions about home care nursing and CNA services, but committed to a home visit with a pediatric client. She even offered her assistance with any legislation we propose this session to help ensure Rhode Islanders get the home care they need!

Thank you, Rep. Casimiro for being a friend of home care! For information about how you can get involved in advocacy on behalf of your staff and clients, contact me today!